Help Save S.M. Lakshan: Treatment for SMA Type 2

Child’s Name: S.M. Lakshan Condition: Spinal Muscular Atrophy (SMA) Type 2 Critical Drug: Zolgensma Cost of Treatment: Rs. 16 crores (approx. $2 million USD) Current Expenditure: 1.8 lakhs Annual Income: 5.4 lakhs Urgency Level: Treatment needed within 3 months to prevent severe deterioration Current Abilities: Limited crawling, difficulty in eating Our Journey: From Diagnosis to Hope for SMA Type 2 Treatment My name is Sivavenimyndhan, and my wife Malathi and I are the parents of a wonderful little boy named S.M. Lakshan. When Lakshan was just 9 months old, we noticed something wasn't right with his development. Worried, we went to see doctors and started on a journey filled with many challenges and some hope. Initial Diagnosis: PPT-2 Treatment for SMA Type 2 Our first visit to the doctor led to a diagnosis of a condition called PPT-2. Lakshan received treatment for this condition for 8 months. Sadly, he didn’t get better as we had hoped, so we decided to seek other opinions. The Real Diagnosis: SMA Type 2 and the Need for Zolgensma Injection At the Institute of Child Health (ICH) in Egmore, doctors confirmed that Lakshan has Spinal Muscular Atrophy (SMA) Type 2. They suggested physiotherapy as the main treatment. However, we felt this wasn’t enough and kept looking for better options. Continued Efforts: Searching for SMA Type 2 Treatment and the Solution with Zolgensma We consulted doctors in Thirunelveli about treatments for muscular dystrophy for 5 months, but still saw little improvement. Finally, we went to the Jeevan Foundation Clinic in Chennai. There, we were referred to the Bangalore Baptist Hospital, where the chief doctor gave us hope by telling us about a drug called Zolgensma, which could potentially cure Lakshan SMA Type 2. The Challenge: Cost of Zolgensma Injection for SMA Type 2 Treatment This drug comes with a huge price tag. The Zolgensma injection costs around Rs.16 crores (about $2 million USD). So far, we have spent around 1.8 lakhs on various treatments and consultations, funded by selling our jewelry and taking loans. With an annual income of only 5.4 lakhs, we cannot afford the cost of Zolgensma on our own. Our Request: Crowdfunding for Zolgensma Injection for SMA Type 2 Treatment We are reaching out to people all over the world for help. Even a small donation can make a big difference in Lakshan’s life. Right now, he cannot walk and can only crawl a little. Eating is a long and hard process for him. Without treatment in the next 5 months, his condition will get worse, making it even harder for him to breathe and eat. Please help us save our child by donating whatever you can and sharing our story with your friends and family. How Zolgensma Injection Can Help SMA Type 2 Treatment The Zolgensma injection is a groundbreaking treatment for SMA Type 2. This one-time gene therapy can significantly improve Lakshan’s quality of life. The high cost of the Zolgensma injection is a challenge, but with your help, we can make this life-saving treatment possible.